Minding Our Elders®

Drug free management of sundowning in people with Alzheimer's

Sundowning, sometimes called Sundown Syndrome, is the label given to late day anxiety, irritability, disorientation and general agitation in people with Alzheimer’s. Sundowning frustrates home caregivers and professional care staff alike, as they often feel completely unable to comfort the person affected.

Researchers and care staff alike are looking for answers. One nursing home in particular has made some dramatic changes in end-of-day care, resulting in a major reduction in the need to medicate residents for late day anxiety. Home caregivers can learn from their work, as well.

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Should we tell a parent with dementia that their spouse has died?

My struggle began as we finally were able to get my suffering father into hospice care. I'd fought doctors for quite awhile, with the help of the nurses in the nursing home who knew him well, to get him better pain relief. The attitude of the doctor, who viewed his chart, was that he slept a lot, so he wasn't in that much pain.

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When short-term caregiving turns into long-term care

It may sound selfish to some, but to caregivers who dove into caregiving with full hearts and no planning, then ended up sustaining this life-altering mode for months and often years, it's a perfectly rational question. People put their lives, as they are living them, on hold in order to care for others. That's good. But when "hold" becomes the new norm, there's a mental adjustment to go through. And sometimes that includes dealing with resentment.

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8 tips that can help caregiver burnout

During those heavy years, I didn't exercise like I did when my kids were young. I ate junk food. I was too tired to care. None of this was good. My sister teases me that I now preach about what I didn't do. And she's right. I didn't take care of myself very well.

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Adult grandchildren caring for their aging grandparents: how to cope?

Whatever the reason that caregiving begins, I hear from a number of young adults who are trying to care for one or more grandparents. Most of them love their grandparent dearly, but they often come up against obstacles that are quite overwhelming for people so young.

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Study shows cancer drug could reverse symptoms of Alzheimer’s disease

A skin cancer drug that has been available for nearly 13 years could be the new Alzheimer’s hero. A study using genetically engineered mice showed that bexarotene (Targretin) reversed Alzheimer’s symptoms in mice by eliminating brain-damaging proteins.

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Dr. Travis Stork of “The Doctors” gives advice on heart health

During a recent telephone interview, Dr. Travis Stork honored February, which is Heart Health Month, by focusing on what we can most easily do to maintain a healthy heart. Dr. Stork is co-host of the award-winning television show "The Doctors." Dr. Stork stressed exercise. He is a strong believer in patient empowerment... 

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Deciding whether surgery is a good option for an elder can be tricky

This is a subject close to my heart, as my dad had surgery to relieve pressure from fluid on the brain due to an old World War II injury. A shunt was put into dad's brain to drain excess fluid. This type of surgery is not uncommon and is generally successful. Dad went into surgery a little fuzzy from the fluid, but still very much himself. A day after the surgery, he fell into a hellish dementia from which he never recovered until death took him a decade later.

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Getting a handle on caregiver guilt

Guilt has a purpose in life. If we are mean, we should feel guilty. If we owe someone an apology, we should be big enough to do so. But guilt is a complicated emotion. We take on the expectations of our culture, our religion, our family. And then we take on the expectations of our toughest critic – ourselves. That committee that meets in our head tells us we are not doing this caregiving thing well enough. If we were "good" people, we'd just keep answering the phone endlessly until Mom found something else to do.

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New studies reveal knowledge about the path Alzheimer’s disease may follow

Recent news that the path Alzheimer’s disease travels in the brain may finally have been nailed down has created a lot of excitement. Researchers believe this discovery may lead to a new direction in developing a way to prevent or cure the disease. A New York Times article reports on two independent studies, both of which concluded that Alzheimer’s disease seems to spread like a viral or bacterial infection by a “distorted protein known as Tau.” These studies were done on mice.

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Help your kids cope with grandparent's dementia

Children can be frightened by the changes in the grandparent who was once gentle and loving, but could now have become cranky and occasionally downright mean and abusive. How we, as parents, handle the changes in our own parents can affect how well our children handle the changes. But each child is different and each set of circumstances is different. So where to you start when it's time to explain?

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Wife struggles to care for husband with early on-set Alzheimer’s

Dear Carol: My husband developed Alzheimer’s disease at 46. I’ve cared for him on my own for three years, while also running the business we started years ago. I can’t leave my husband at home for long so I frequently have to leave work to check on him. This is affecting my ability to do my work well. I’ve tried hiring in-home care and that helped, but I still worry if they will show up, or if someone is late in the morning, then I will be late to my business. I also don’t feel he gets much mental stimulation at home. I’m exhausted when I do get home, since I need to get up very early to take care of his needs, and when I get home he needs more care. I love my husband dearly and don’t want to feel like I’m giving up on him, but I can’t continue this way, either. What are my options?  - Emma

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Geriatric care managers boon to distance caregivers

The profession of geriatric care coordinator or manager - they go by various names - is a profession that has evolved out of an obvious need. There are legions of harried caregivers, social workers and nurses have a front row view into what a caregiver's life is like. Some of these professionals came to believe that maybe they could make a profession out of helping these caregivers. These entrepreneurs hung out their shingles and a profession was born.

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Celebrating Valentine's Day when loved one can't understand

During their last years, my parents' special days would be considered by some to be a fiasco, if the celebrations were judged by traditional standards. Yet, I'll never regret trying my best to simulate the kind of celebration my parents had always had. Celebrations give life some texture. And if anyone needs something to make one day different than all of the others, it's people who are already coping with the indignities the aging process can bring.

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Study shows nicotine patch could help some with mild cognitive impairment (MCI)

Smoking is bad for our health. Nothing has changed that often proven fact. Also, nicotine is part of the addictive element in smoking. However, nicotine as administered through a medical patch, rather than a tobacco product, was shown in a recent study to have some benefit for nonsmokers with mild cognitive impairment (MCI). Not everyone with MCI goes on to develop Alzheimer’s disease, but many people do. Therefore, the interest in studying MCI is intense.

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Use compassion with Mom to help her move

Dear Carol: My dad died suddenly about a year ago. Mom is 73 and quite frail for her age. She’s also slipping cognitively. She can’t keep up the house they’ve lived in for decades. She seems afraid to live there alone, so I’d like to see her move to assisted living. She actually wants to make the move, but she seems frozen when it comes to getting rid of anything in the house so she can move. How can I get her going with this project? - Amanda

Dear Amanda:  Your mom has decades of memories attached to the home, most of which likely include your dad. She probably feels she’s leaving a part of him behind if she moves out. At the same time, she’s rightly concerned about living alone. Remind her that Dad would want her to be safe.

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When both parents have dementia

Statistics vary, but upward of thirty percent of caregivers die before those they are caring for. Some of those are adult children, lonely and depressed, isolated and frustrated, often torn by guilt. These caregivers can develop cancer, commit suicide, or have heart problems and other ill health that can likely be traced to the stress of caring for their loved ones.

How do caregivers cope when they have two parents with dementia?:

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UK reporter chronicles dementia awareness course: calls it a “taste of hell”

The saying that we can’t really understand another person’s experience until we’ve “walked in their shoes,” has always felt right to me. Intelligent people can be educated to the brim and be able to give excellent “book” advice. However, it frequently takes someone who has endured an experience similar to ours in order to make us feel thoroughly understood. This is where real "hands on" advice differs from advice in the abstract.

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When an ill parent turns on the charm with the doctor

 A friend of mine took her mother to the doctor because she suspected her mom was in the early stages of Alzheimer's. My friend sat dumbfounded as her mom charmed the socks off the doctor and seemed as sharp as she was ten years ago. The mother denied any health issues, especially those associated with memory. The doctor, too busy to run tests on someone who seemed "so good for her age," signed off of some prescriptions and sent them off. My friend felt like banging her head against the wall.

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When your parent repeats "I want to go home"

A tip, here, for people who still have their elder at home, but the elder still asks to "go home." Understand what the person wants and then try the same distraction or relearning technique. Some people go as far as taking the person in the car and driving around the block, then re-entering the house. This can work for awhile, but not likely that long. No matter what you do, you will hear it again: "I want to go home." The point here is that no matter what you do or say, likely you will continue to hear the plea to "go home."

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