Alzheimer's Feed

Caregiving Rewards Often Outlast Challenges

Caregiving6Many people are providing intensive care for adult children, others for parents or spouses. I feel it’s safe to say that all of us, with our diverse caregiving responsibilities, have had times when we wonder if we can go on. Conversely, nearly all of us have also had moments when we’ve looked at the people we are caring for and realized that being a caregiver is not just a responsibility, but an honor.

Read the full article on HealthCentral about how caregiving rewards can affect our lives forever:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


You Are Not Alone: Caregivers Share Their Experiences and Insights

CaregiverGroupThankfully, during this past decade, because of technology along with other awareness efforts, caregiver support has exploded with resources and professional help. Still, caregivers long to connect personally with each other and share, on an intimate level, what they’ve learned. The stories below are examples of that sharing spirit. Caregiving will change your life both positively and negatively, but these caregivers make it clear that you don’t have to go through it alone.

Read full article on HealthCentral about caregivers helping caregivers:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Dementia Caregivers Grief Soul Deep, Defies Labeling

Depression7When a beloved elder dies, we may have varying reactions, frequently changing moment by moment. Naturally, there’s grief and the realization that we’ve seen the last of our loved one’s physical presence. Often, however, if the death follows a long illness or significant pain, we can also feel a sense of relief that their suffering is over and we can get on with healing. It’s often the in-between time - the caregiving years - that are the most difficult to label. Both of my parents endured long, slow declines with significant pain before their deaths. However, my dad’s decline was one that many caregivers of those with dementia will relate to.

Read full article on HealthCentral about dementia caregivers and their unique type of grief:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


People with Dementia Are Often Undertreated for Pain

PhysicalTherapyWhen people lose their ability to articulate what is causing them pain, this pain is often overlooked by doctors. A recent Slovenian study presented at the Congress of the European Academy of Neurology (EAN) in Copenhagen and conducted by Dr. Martin Rakusa investigated this problem. It involved 452 patients with an average age of 65 who had been treated for diabetes over a period of many years.

Some 44 percent (199 individuals) were considered cognitively impaired. Using careful examination to compare pain levels of those who could communicate with those who could not, it became obvious to the team that those who could not communicate their pain still experienced as much pain as those who could.

Read full article on HealthCentral about treatment for pain in people with dementia:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

An amazing book of stories that will touch your heart and encourage you, especially if you are a caregiver. Carol  Bradley Bursack also has an excellent web site devoted to the elderly and their caregivers. - Carol Heilman


Overly Dependent Parent Presents Delicate Challenge to Family

Nursinghome3Dear Carol: My parents were married for 56 years before Mom died. Dad eventually moved into assisted living. His mind is good, though he had a stroke years back so he uses a cane. He can still drive. My sister works part time, yet Dad is at her house every day from breakfast until evening. I live 50 miles away, but help out on weekends. I’m afraid that, because of Dad's grief, we’ve overdone the caregiving. We’ve talked with Dad, but he doesn’t see the problem. How do we convince him that we love seeing him but he needs to take advantage of his new home and give us some space? – Steve

Read full column on Inforum about helping dad integrate into retirement center:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol 


Stress and Alzheimer's: More Evidence Strengthens the Link

Brain6Stress has long been considered a major risk for developing Alzheimer’s, but there hasn’t been any real understanding as to why this is so. Now, researchers at the Center for Translational Research in Neurodegenerative Disease at the University of Florida think that they’ve come closer to discovering the connection.

Read full article on HealthCentral about stress and Alzheimer's and need to take care of ourselves:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Celebrate July 4th: Planning a Picnic for an Elder in a Senior Living Community

Barbecue_grill_sausage_sausage_227499Would you prefer a hot dog or hamburger? Ketchup, mustard, relish? Chips, salad, dessert?  All were available during the annual barbecue picnic at the nursing home where my parents, my uncle and my mother-in-law lived at different times. While people also enjoyed the monthly birthday dinners and holiday festivities hosted by the nursing home, the summer barbecue was one of the most anticipated events of the year.

Read full article on Agingcare about arranging a picnic when your loved one lives in a care facility:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Protection for Nursing Home Residents: Will New Rules Remain?

Nursinghome3New rules for the protection of nursing home residents have been implemented as part of the Affordable Care Act (ACA). Many of these rules provide answers to concerns that have troubled families with loved ones living in skilled nursing facilities (SNFs), generally called nursing homes. I emailed Medicare expert Ginalisa Monterroso for an update on these rules and what they mean for nursing home residents and their families.

Read full article on HealthCentral about rules to protect nursing home residents: 

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Is Alzheimer's As Hard on the Caregiver As the Person with the Disease?

AnxietyIt seems shocking to hear people ask whether dementia, particularly Alzheimer’s since it’s the best known, is as hard on the caregiver as it is on the person with the disease. After all, developing dementia of any kind is one of our greatest fears, even overtaking cancer. A caregiver who asks this question must be incredibly heartless and selfish, right? Yet, people who’ve never been a caregiver for someone with dementia need to think this through. When a loved one develops dementia, both the care receiver and the caregiver have entered an incredibly challenging time of their lives.

Read full article on HealthCentral about Alzheimer's and the toll it takes on the caregiver:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol

LAST DAY: Ebook on sale this week for $2.99 in honor of "the longest day" and Alzheimer's Authors


Hospice Care about Re-Focusing Priorities, Not Giving Up

Hands17Our culture is steeped in language that makes accepting the terminal diagnosis of ourselves or a loved one more difficult to accept than it needs to be. Doctors say, “I’m sorry, there’s nothing more we can do. You might want to look into hospice care.” Patients tell their doctors that they want “aggressive treatment,” until there is nothing else that can be done, then they will go on hospice care.

Read full article on HealthCentral about how hospice is an active choice:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol

Ebook on sale this week for $2.99 in honor of "the longest day" and Alzheimer's Authors