Diagnosis Feed

Hospice Care about Re-Focusing Priorities, Not Giving Up

Hands17Our culture is steeped in language that makes accepting the terminal diagnosis of ourselves or a loved one more difficult to accept than it needs to be. Doctors say, “I’m sorry, there’s nothing more we can do. You might want to look into hospice care.” Patients tell their doctors that they want “aggressive treatment,” until there is nothing else that can be done, then they will go on hospice care.

Read full article on HealthCentral about how hospice is an active choice:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol

Ebook on sale this week for $2.99 in honor of "the longest day" and Alzheimer's Authors


Parsing Validation: Helping People Living with Dementia Maintain Self-Worth

CaregiverWomanValidation is a term often used to describe different approaches to helping improve the quality of life of people living with Alzheimer’s disease and other types of dementia. Webster defines the word as “recognition or affirmation that a person or their feelings or opinions are valid or worthwhile.” I believe that all caregivers who practice any form of validation when caring for a person living with dementia aim for the same result. They want to help the person maintain their sense of self, and they want to lower the anxiety and stress that stems from the person living with dementia losing the ability to readily understand the world around them.

Read full article on HealthCentral about validating the people who have various types of dementia:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

The stories in this fine book showed us how others have gone through similar things with their families and that is somehow reassuring. There are some helpful suggestions but mostly there is the recognition that others went through the same thing. All we can do is our best. That is greatly reassuring during these difficult emotional times. If you are a caregiver, this is a must read. - Delores Edwards


Lewy Body Dementia Caregivers Share Their Personal Experiences

FatherDaughter8...As with most types of dementia, family members are the primary caregivers by default, at least at the beginning of the disease. They are usually the people who notice that something is not right with their spouse or parent. Again, like Alzheimer’s and most other types of dementia, care needs escalate with time. This ongoing care can be physically arduous and emotionally demanding. 

Jeanne Gibbs, whose husband had LBD, illustrates her husband’s state of mind with the scenario below, which she handled like a pro:

Sometimes (but certainly not always!) the cause confusion in dementia can be determined and dealt with.

I worked at home to support us. One day my husband, Coy, was waiting for a rain-delayed baseball playoff game, and he came into my office...

Read full article on HealthCentral about some of the challenges that lewy-body caregivers face:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

Ebook on sale this week for $2.99 in honor of "the longest day" and Alzheimer's Authors

An amazing book of stories that will touch your heart and encourage you, especially if you are a caregiver. Carol  Bradley Bursack also has an excellent website devoted to the elderly and their caregivers. - Carol Heilman


6 Ways to Stop Stressing about Potential Disease

Brain4Many people are genetically predisposed to developing certain diseases, among them diabetes, cancer, heart disease and Alzheimer’s. It’s natural to worry if you’ve watched family members endure the illnesses. However, the cortisol released in your body by chronic stress, which can be caused by worry, could increase your susceptibility. The fix? Be proactive. Limiting stress may not completely protect you from the disease that you dread, but it can help your overall health and, for some diseases, this could help you avoid a trigger. Where do you start?

View slide show on HealthCentral about how to stop stressing about potential disease:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

The stories in this fine book showed us how others have gone through similar things with their families and that is somehow reassuring. There are some helpful suggestions but mostly there is the recognition that others went through the same thing. All we can do is our best. That is greatly reassuring during these difficult emotional times. If you are a caregiver, this is a must read. - Delores Edwards


June is Brain Awareness Month: Helping Caregivers Cope

WheelchairmanJune is Alzheimer’s and Brain Awareness month. What better time to become educated about how to help people who have dementia live a better quality of life, help caregivers with support and resources, and teach others about the many types of dementia and other brain diseases? The National Alzheimer’s Project Act (NAPA) was signed into law in 2011. Since that time, milestones have been identified to meet the plan’s biomedical research goals. But until recent years, the creation of similar milestones on patient care and caregiver support has lagged.  In 2014, the Alzheimer’s Association Workgroup published recommendations – including patient-care milestones – to augment the U.S. Government’s “National Plan to Address Alzheimer’s Disease.”

Read more on HealthCentral about Alzheimer's and Brain Awareness Month and tips on how caregivers can grow:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Memory Impairment May Not Be First Sign of Alzheimer's

Memory1Because Alzheimer’s disease is thought to develop for years before symptoms become evident, the earliest possible detection is very important, so that the onset of the disease may be delayed and the overall care improved through the years. and hopefully, as therapies are developed, reversed. But how do you know if you or your loved one may have it? Indeed, a new study showed that behavioral changes affected 80 percent of those who were diagnosed with mild cognitive impairment (MCI) which for many people is a precursor to Alzheimer’s. These behavioral changes often became evident well before noticeable problems with memory.

Read full article on HealthCentral about the first signs of Alzheimer's:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

An amazing book of stories that will touch your heart and encourage you, especially if you are a caregiver. Carol  Bradley Bursack also has an excellent website devoted to the elderly and their caregivers. - Carol Heilman


Male Caregivers' Visibility Increasing as Society Changes

MotherSon3...What needs to be done to give men the visibility and support they deserve? Society must catch up with reality. Since men have always been providing care to some degree and will continue to do so in increasing numbers, the fact that a large percentage of family caregivers are men should become recognized as the norm. Strong men are making this happen by overcoming a perceived threat to their manhood and allowing themselves to become visible in public and online. Dedicated women are also spreading the word.

Read full article on Enlivant about how male caregivers are rising in numbers and visibility:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


12 Tips that May Help Spousal Caregivers Have a Better Life

CommunicatingWhile family members who provide care for loved ones share many issues, there’s a different emotional dynamic between caregiver and care receiver when the care partners are spouses than when they are an adult child caring for a parent. Here, we offer some tips for spouses.

View full slideshow on HealthCentral about how spousal caregiving is different for adult child caregiving:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

An amazing book of stories that will touch your heart and encourage you, especially if you are a caregiver. Carol  Bradley Bursack also has an excellent website devoted to the elderly and their caregivers. - Carol Heilman


Different Types of Memory: Life Experience Could Offset Cognitive Decline Due to Aging

FathersDayCould life experience make up for some of the effects of age on the brain? According to researchers from the School of Business Administration at the University of California, Riverside, it can and does. The research group measured a person’s decision-making ability over their entire lifespan. Using two difference types of intelligence - fluid and crystallized - they found that experience and acquired knowledge from a lifetime of decision-making often offset the declining ability to learn new information. Fluid intelligence is the ability to learn and process new information. Crystallized intelligence is experience and accumulated knowledge. 

Read full article on HealthCentral about aging and the different types of memory:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


The Many Faces of Dementia: Knowing the Symptoms Helps with Treatment

Brain5Dementia is not a single disease. It’s a non-specific syndrome that affects cognitive areas of the brain that control memory, language, attention and problem-solving. To be considered dementia, the problems must be severe enough to affect daily living. Because Alzheimer’s is responsible for 50 to 60 percent of dementia cases, it’s the most broadly recognized form. However, there are up to 50 different known versions of dementia. Dementia symptoms can include changes in personality, mood, and behavior. While some cases, such as dementia caused by medications, infections, hormone imbalances, vitamin deficiencies and alcohol and drug abuse can be cured, most cases cannot.

Read more on HeathCentral about the most common types of dementia:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol