Dignity Feed

5 Tips for Maintaining Relationships with Friends when Dementia Joins the Party

HandsComfort3Memory loss can be one of the first symptoms a person experiences with Alzheimer’s, and those living with Lewy body dementia may also become easily confused. These varied symptoms can make maintaining relationships more difficult, but friendships are no less important for people with dementia than for the rest of us. Maintaining relationships, however, especially among friends who are not pressured to continue involvement because of a new sense of duty over a person with dementia, can take work. This guide discusses how caregivers can help by educating willing visitors who want to be helpful but simply don’t know how to make a visit tolerable, let alone, meaningful.

Read full article on HealthCentral for tips on maintaining relationships with dementia in the mix:

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“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Recovery from Double Grief May Require Professional Care

CryingWomanDear Carol: My mom passed away a month ago from a major stroke. Since her death, I seem to either be in a fog or collapsing into tears. My sister, Carolyn, had been caring for mom until two years ago, but then Carolyn had a sudden heart attack and died. She was only 43. Mom then came to live with us. Mom had COPD and heart disease. My husband has always been a rock of support and love and my two kids have handled Mom's death well. They are trying to help me even though they, too, are grieving their aunt and their grandma.  I’m the one who is a mess. I miss my mom more than I ever thought possible. My grief seems to be more consuming than that of other caregivers who’ve lost a parent. I’m not sure what to do with my overwhelming feelings.  I’m not even sure what I’m asking for except that I need guidance. SC

Read full column on Inforum about buried grief and fresh grief:

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“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Hospice Care about Re-Focusing Priorities, Not Giving Up

Hands12Our culture is steeped in language that makes accepting the terminal diagnosis of ourselves or a loved one more difficult to accept than it needs to be. Doctors say, “I’m sorry, there’s nothing more we can do. You might want to look into hospice care.” Patients tell their doctors that they want “aggressive treatment,” until there is nothing else that can be done, then they will go on hospice care.The crux of these conversations is that medicine will do everything possible and then when you give up you will go on hospice care.

Read full article on HealthCentral about how hospice care is "doing something."

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Dementia: Is It As Hard on the Caregiver As the Person with the Disease?

AnxietyIt seems shocking to hear people ask whether dementia, particularly Alzheimer’s since it’s the best known, is as hard on the caregiver as it is on the person with the disease. After all, developing dementia of any kind is one of our greatest fears, even overtaking cancer. A caregiver who asks this question must be incredibly heartless and selfish, right? Yet, people who've never been a caregiver for someone with dementia need to think this through. When a loved one develops dementia, both the care receiver and the caregiver have entered an incredibly challenging time of their lives.

Read full article on HealthCentral about the stress and frustration - then the guilt - that dementia caregivers cope with

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Memory Impairment May Not Be First Sign of Alzheimer’s

Memory1Because Alzheimer’s disease is thought to develop for years before symptoms become evident, the earliest possible detection is very important, so that the onset of the disease may be delayed and the overall care improved through the years. and hopefully, as therapies are developed, reversed. But how do you know if you or your loved one may have it?

Read full article on HealthCentral about the true early signs of Alzheimer's:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Valentine's Day When Your Spouse Is Unresponsive

BrokenHeartThis Valentine’s Day, millions of spouses will be masking their pain as they struggle to celebrate a day dedicated to love. Their husband or wife who has dementia either doesn’t understand what the day is about or, worse yet, doesn't recognize them for who they are.

Read full article on HealthCentral about spouses coping with Valentine's Day when dementia shares the spotlight:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Celebrating Love: Dementia Caregivers Speak Up

RosesYellowValentine’s Day, anniversaries, and birthdays have traditionally been celebrated with balloons, gifts, cards, parties, and food. Sadly, when dementia enters into the picture, such general mayhem may overwhelm a person already confused by his or her surroundings. Even attempting to celebrate love can become a challenge. The choice about whether or not to mark special days is often fraught with pain for the caregiver.

Read full article on HealthCentral about how dementia caregivers (and other caregivers) show love:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Be smart: Plan for your own care needs ahead of crisis

020de936-88fe-4604-98b5-80be46c60196_200x200Dear Carol: My wife died of cancer three years ago. Her decline was long and slow, so when the end came there was some relief, along with the agonizing grief. I’ve slowly recovered enough to enjoy life. However, I’ve now been diagnosed with early onset Alzheimer’s disease (EOAD). I also have neuropathy which affects my balance. My wife had a great attitude during her illness and I’m determined to use her as my example for dealing with my own challenges. We had no children, and I have no siblings, but I have many wonderful friends who have been helping me with shopping. I’ve appointed a close friend as Power Of Attorney for health and financial reasons and hired a housekeeper who cleans and does some light cooking. She's wonderful, and we get along great, but the time will come when I will need more care. How do I start setting up help now, without going overboard and losing my privacy before I need to? PR

Read the full column on Inform about planning for your own care:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


A Speech Pathologist Explains Common Swallowing Issues Part 2: Tips for Food Preparation

Caregiving6...Families may be instructed to puree all foods, but they could be unsure exactly what that means. Additionally, a plate with a pile of pureed meat, vegetables and other foods may not be very appealing to anyone, so arrangement of the food is important. The following suggestions should help, but may need to be modified if a patient has restrictions in their diet due to other medical conditions or has to have their liquids thickened. 

Read more on HealthCentral from an expert on swallowing issues: Tips for food preparation

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Using Physical Therapy to Achieve the Best Version of You

PhysicalTherapyAs people age, they are likely to find that balance issues, arthritis, neurological diseases, and other health problems become a threat to their quality of life. People facing these problems often find that being evaluated and treated by a physical therapist can be a significant step toward improvement in safety and mobility, or at least stabilization.

Read more on HealthCentral about how physical therapy can help people age well:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer