Grief Feed

Feelings of Unearned Guilt Intrinsic to Most Caregivers

GuiltIf ever there’s a group of people who suffer deeply from unearned guilt it’s caregivers. Whether you’re the parent of a vulnerable adult, an adult child of aging parents or the spouse of a vulnerable adult, you are bound to have your “if only” times where you are sucked into the quicksand of guilt. The reality is that most things you could have done differently wouldn’t have made a huge difference overall. Even if another approach would have made a difference, you can’t go back. Staying mired in guilt is counterproductive for you as well as your care receiver. While some reasons caregivers feel guilty are unique to their situation, many are commonly shared in caregiving. Below, I’ve listed four causes of unearned guilt that most caregivers share, along with some ideas that I hope will help you look at your situation more realistically:

Read more on HealthCentral about guilt and how it affects caregivers: 

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

An amazing book of stories that will touch your heart and encourage you, especially if you are a caregiver. Carol  Bradley Bursack also has an excellent website devoted to the elderly and their caregivers. - Carol Heilman


The Differences Between Palliative Care and Hospice Can be Confusing

Comfort19Many people have heard of hospice care but they mistakenly think that it’s just a way to help cancer patients be more comfortable at the end of their lives. Fewer people have heard of palliative care, and they may have no idea what it is. The truth is that hospice and palliative care are related but used for different reasons at different times, and everyone should be well-versed in what they offer. Here, we’ll clarify some points of confusion.

View full slideshow on HealthCentral about the differences between palliative care and hospice:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


How to Be a Friend to an Isolated Caregiver

Friends8Caregivers are often isolated by the nature of their responsibilities. Some can’t leave home without arranging for someone to come and care for their loved one. Others are simply taxed to expend energy on friends no matter how lonely they may feel. So, how can you be a friend to an isolated caregiver?

View full slideshow on HealthCentral about how to be a friend to a caregiver who is struggling:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Transitioning from Hospital to Nursing Home Most Practical Move for Some

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Dear Carol: My 83-year-old mother has lived with my family for two years, but her Type 1 diabetes and lung problems have been worsening. She also has severe pain from arthritis. Mom was recently hospitalized with a respiratory infection and took a long time to respond to treatment. They finally got the bacteria under control but she’s very weak and her breathing needs monitoring. The doctor insisted that she should only be released to a nursing home. I asked if this was just a time for recovery but he was strong in recommending that she move there permanently. He said that she needs more nursing care than she can get at home. We have good nursing homes here, but I’m having a hard time coping with the change. Mom seems to realize that this is best, so I know that I’m the one who must adjust. Do people often go from the hospital to a nursing home as a permanent move? KM

Read full column on Inforum about hospitalization ending in nursing home care:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

An amazing book of stories that will touch your heart and encourage you, especially if you are a caregiver. Carol  Bradley Bursack also has an excellent website devoted to the elderly and their caregivers. - Carol Heilman


Making Life More Fulfilling for Older Adults with Low Vision

LowVisionMany people would consider losing their sight one of the worst potential losses that they could encounter. While most of us will not suffer from complete blindness, millions currently suffer from some form of visual impairment, with numbers growing rapidly as we age. According to the National Eye Institute (NEI), older adults represent the majority of the visually impaired population, with visual impairment included among the 10 most prevalent causes of disability in the U.S.

Read full article on Agingcare about making life easier for those with low vision:    

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


How We Can Balance Elder Care With Other Relationships

Balance4 (2)As caregivers, the first thing to go is the time, or even the energy and desire, to maintain friendships. Even maintaining friendships that go back years can seem like just one more thing to do when a caregiver is so swamped with demands. So, caregivers stop seeing friends, hence friends stop asking them to do anything fun. Friends get tired of being turned down. And caregivers forget that life was once fun. They are too busy giving care to everyone else to even notice the loss.

Read full article on Agingcare about balancing caregiving with other relationships:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Hard Times for Caregivers: When Loved Ones Rally Before Death

DeathComfortMany adults sit by the side of their dying loved ones, sometimes for days, working on accepting the loss of their physical presence and what this loss means in their lives. Then, a spouse, parent, child or friend suddenly rallies, becomes more stable and in some cases wants to talk. We grasp at what seems to be a turnaround and sigh with relief. They are going to hang on for a while; or are they?

Read full article on Agingcare about the intricacies of the death rally:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Can Weather and Lunar Activity Affect People Living with Dementia?

Night5Dear Carol: My mother lives in an assisted living facility. She has arthritic pain and is in the early stages of Alzheimer’s, but she usually does well with the support that she has. When I visited her last Saturday evening she seemed upset and confused and she told me that she didn’t feel well. I suggested that she rest and reminded her that I’d see her in the chapel the next day for services. The next morning it seemed like a lot of the residents in the chapel were disgruntled, including Mom, who hadn’t improved overnight. We’d had a huge air pressure change in the last day, and I began to wonder if weather causing problems with health is myth or fact. I even mentioned it to one of the nurses after I escorted Mom back to the common room. The nurse nodded her head and said, “Oh, yes. We sure see it here.” She said that a full moon affects the residents, too. Now I'm beginning to wonder if there is something to this idea. What do you think? Jen

Read full column on Inforum about how weather and lunar cycles may affect your loved one's behavior:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Caregivers Confess: Thoughts We Aren’t Proud Of

FriendsWouldn't it be nice to be a caregiver who had only loving thoughts every moment of the caregiving day? Maybe there are caregivers like that. If you are one of them, I truly congratulate you. Most of us who have been through years of caregiving will not fall into that category.  Here's a sampling of caregiver thoughts that I've heard people talk about. You'll likely feel better just reading them.

Read full article on Agingcare about  those little thoughts that we wish we didn't have:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Faith Helps Some Caregivers Relieve Stress According to Study

Prayer3As a longtime family caregiver who provided, and continues to provide, differing levels of care for loved ones with illnesses, I can attest to the fact that caregiving can be unimaginably stressful. For dementia caregivers, the stress is even more extreme. Only lately have we seen the results of studies that have followed family caregivers. One of the most scientific, in that it uses hard physical evidence, was published last spring. The study, by Ohio State University in conjunction with the National Institute on Aging, showed that caregivers may have their life span shortened by four to eight years.

Read full article on HealthCentral about how faith helps many caregivers:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer