Guilt Feed

The Challenge of Going Public with an Alzheimer’s Diagnosis

DepressedElderSadly, even after years of work to educate the public about any illness that affects the brain, a stigma remains. No matter that most, if not all, mental illnesses have a biological basis. No matter that people aren’t any more responsible for a brain illness than they are for other illnesses. The fact remains that whether the disease affects the brain occurs at a younger age in the form of depression or bi-polar disease or an older age in the form of Alzheimer’s disease or another dementia, people with brain illnesses are often reluctant to acknowledge their illness for fear of being treated differently than others. There has been some progress when it comes to enlightening the public, but not nearly enough.

Read full article on HealthCentral about going public about dementia:

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An amazing book of stories that will touch your heart and encourage you, especially if you are a caregiver. Carol  Bradley Bursack also has an excellent web site devoted to the elderly and their caregivers. - Carol Heilman


Caregivers Confess: Thoughts We Aren’t Proud Of

FriendsWouldn't it be nice to be a caregiver who had only loving thoughts every moment of the caregiving day? Maybe there are caregivers like that. If you are one of them, I truly congratulate you. Most of us who have been through years of caregiving will not fall into that category.  Here's a sampling of caregiver thoughts that I've heard people talk about. You'll likely feel better just reading them.

Read full article on Agingcare about  those little thoughts that we wish we didn't have:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


No Need to Feel Guilty About Wishing a Loved One Could Let Go

DeathDear Carol: My mom is 94 years old and frail. She has a weak heart and bad lungs, yet she hangs on. I’m a 73-year-old widow. I took care of Mom at home for over five years, but two years ago I placed her in a nursing home. I felt terrible guilt about doing that because I’d promised her that I wouldn’t, but my own health was deteriorating and I couldn’t physically transfer her anymore. There was no other choice. Apparently, we both had outdated ideas about nursing homes or we would have done this sooner since we are both pleased. But Mom is now bedridden and can barely murmur a few words. There is no quality in her life that I can see and I find myself wishing that she could just let go. Then I feel ashamed. She’s very religious and isn’t afraid of death, and neither am I, but I'm still confused about my feelings. Guilt and shame nag at me even though I know that her current situation is miserable. How do I deal with this feeling of disloyalty about wanting her life to end? SL

Read full column on Inforum about the guilt from wishing an ill loved one would die:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Recovery from Double Grief May Require Professional Care

CryingWomanDear Carol: My mom passed away a month ago from a major stroke. Since her death, I seem to either be in a fog or collapsing into tears. My sister, Carolyn, had been caring for mom until two years ago, but then Carolyn had a sudden heart attack and died. She was only 43. Mom then came to live with us. Mom had COPD and heart disease. My husband has always been a rock of support and love and my two kids have handled Mom's death well. They are trying to help me even though they, too, are grieving their aunt and their grandma.  I’m the one who is a mess. I miss my mom more than I ever thought possible. My grief seems to be more consuming than that of other caregivers who’ve lost a parent. I’m not sure what to do with my overwhelming feelings.  I’m not even sure what I’m asking for except that I need guidance. SC

Read full column on Inforum about buried grief and fresh grief:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Hospice Care about Re-Focusing Priorities, Not Giving Up

Hands12Our culture is steeped in language that makes accepting the terminal diagnosis of ourselves or a loved one more difficult to accept than it needs to be. Doctors say, “I’m sorry, there’s nothing more we can do. You might want to look into hospice care.” Patients tell their doctors that they want “aggressive treatment,” until there is nothing else that can be done, then they will go on hospice care.The crux of these conversations is that medicine will do everything possible and then when you give up you will go on hospice care.

Read full article on HealthCentral about how hospice care is "doing something."

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Dementia: Is It As Hard on the Caregiver As the Person with the Disease?

AnxietyIt seems shocking to hear people ask whether dementia, particularly Alzheimer’s since it’s the best known, is as hard on the caregiver as it is on the person with the disease. After all, developing dementia of any kind is one of our greatest fears, even overtaking cancer. A caregiver who asks this question must be incredibly heartless and selfish, right? Yet, people who've never been a caregiver for someone with dementia need to think this through. When a loved one develops dementia, both the care receiver and the caregiver have entered an incredibly challenging time of their lives.

Read full article on HealthCentral about the stress and frustration - then the guilt - that dementia caregivers cope with

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


6 Tips to Have More Fun While Caregiving

FatherSon8Many dementia caregivers feel as though they are treading water just to avoid sinking under the often exhausting pressures associated with dementia care. But consciously changing your attitude can, with practice, significantly change how your days, and those of your loved one, unfold. Here are some tips to get started.

View full slideshow on HealthCentral about getting the most out of caregiving:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Short Valentine's Stories Needed for Dementia Spouses' Valentine's Day (or Anniversary) Celebrations

LoveI've been through many Valentine's Day celebrations with my parents where I tried my best to help them carry on their past traditions. It was grueling for me and only somewhat satisfactory for them, but I felt that it must be done. I'm now collecting a few stories for publication in an article that I'm writing on Valentine's Day celebrations. For this, I'd like to hear from spouses who try to carry on the Valentines Day (or anniversary or any day celebrating their love) traditions. I'd also like to hear from someone who feels that it's best to skip marking that day and when or why they made that understandable decision. 

Please send stories via the www.mindingourelders.com "contact" box, or message me on Facebook or Twitter (@mindingourelder). I'm looking for little vignettes of around 100 words. I want to credit you so please give the name as you'd like to be credited. The state or province where you live would also be nice.

Whenever possible, I like to share your stories with a huge readership. This will be an article for HealthCentral.com so your stories will help a lot of people.

Thanks to all of my dedicated readers, caregivers, seniors, spouses and loved ones.

Blessings,

Carol

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


8 Tips to Help Caregivers Improve Their New Year

Relax3In the New Year, because your loved one’s situation hasn’t changed, you might think that nothing can improve your own situation. But if you are open to change, you may find that the symbolism of the New Year does offer opportunities to make your life better. Resolve to improve your life through better self-care.

View entire slideshow about caregiver self-care on HealthCentral:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Many People Are Not Cut Out To Be a Caregiver and That's Okay

CryingWoman...Similarly, some people may have the insight to recognize that they wouldn't be able to provide quality day in and day out hands-on care for a beloved parent. They may have spent decades building careers that they love, encouraged by the parents who now need care, or they may be people to whom patience is not natural and a repetitive daily grind would become numbing. Are these bad people? No. Selfish people? Again, no. Or at least most of them are not. They simply don't have the personality makeup for the repetitive, nurturing task of long-term hands-on caregiving for vulnerable adults.

Read full article on Agingcare about how not everyone is cut out to be a caregiver - and that's okay!

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer

Safety for your Elders - Peace of Mind for You:  Simple Smart Phone with Large Screen, Jitterbug flip phone, Urgent Response Device   For help CALL:  1-866-222-0703