Hospice and Palliative Care Feed

As a longtime family caregiver who provided, and continues to provide, differing levels of care for loved ones with illnesses, I can attest to the fact that caregiving can be unimaginably stressful. For dementia caregivers, the stress is even more extreme. Only lately have we seen the results of studies that have followed family caregivers. One of the most scientific, in that it uses hard physical evidence, was published last spring. The study, by Ohio State University in conjunction with the National Institute on Aging, showed that caregivers may have their lifespan shortened by four to eight years. Read more →


Dear Carol: My parents are in their 60s and have decided that they need to have their legal paperwork updated. I think that this is smart and my siblings agree. The problem is that my parents want to designate me as their Power of Attorney for both healthcare and financial decisions since I live in their community. Unfortunately, my siblings feel slighted. While I don’t love the idea of having this responsibility, I have no problem doing what’s needed when the time comes. My brother lives 500 miles away and my sister lives over 800 miles in the other direction so this seems to be the sensible decision. There’s no concrete reason why my siblings would object to this arrangement except for sibling rivalry. My siblings would be assigned as secondary POAs and they would have their equal shares laid out in the will. How do we get over this bump? – ST  Read more →


Dear Carol: My dad is in a good assisted living facility. He’s 96, and other than congestive heart failure, he’s in fair health for his age and has a good attitude for the most part. He was having physical therapy for hip and knee problems but now refuses it. I feel that at his age he can do what he wants so I haven’t pushed it. He uses a wheelchair to get around for the most part, but he can transfer himself. The nurse at the ALF said that he’d probably qualify for hospice care, though a doctor would have to make the determination. She did say that it’s a good idea for us to check into hospice because they can offer a lot of assistance that the assisted living facility can’t provide. Read more →


According to the National Cancer Society, the majority of bladder cancers occur in the older population, with the average age... Read more →


Hospice organizations are keenly aware of the soothing power of music. Sometimes the music may be used casually, by the facility or the family, knowing that this is a type of music that the person who is in the dying process had always enjoyed. Increasingly, though, employing trained music therapists has been favored. This type of therapy seems especially helpful with those who are dying from Alzheimer’s or other forms of dementia. Perhaps this is because in the final stage of dementia, people have usually moved beyond the point where conversation is possible. Read more →


Many people have heard of hospice care but they mistakenly think that it’s just a way to help cancer patients be more comfortable at the end of their lives. Fewer people have heard of palliative care, and they may have no idea what it is. The truth is that hospice and palliative care are related but used for different reasons at different times, and everyone should be well-versed in what they offer. Here, we’ll clarify some points of confusion. Read more →


Choosing an individual or a company to come into our home, or that of a vulnerable loved one, to provide assistance with anything from cleaning to personal services is never easy. We are giving an unknown person access to not only our property but to the safety of our loved one who may need care while we are not able to supervise. Choosing the right person or company should be done methodically, and education can help you ask the right questions. Read more →


Dear Carol: My dad’s been in a nursing home for several years and is ready for hospice care. I read your column about hospice care being covered by most insurances but I’m wondering what happens in a nursing home. Does insurance start to cover nursing home costs, then, too? Would it be better to move Dad home for this time period? It’s hard to make these decisions at such a stressful time. – RE Read more →


Hospice organizations are keenly aware of the soothing power of music. Sometimes the music may be used casually, by the facility or the family, knowing that this is a type of music that the person who is in the dying process had always enjoyed. Increasingly, though, employing trained music therapists has been favored. Read more →


"What’s the difference between being a patient and being a 'person? Often, “patient” means you’re suffering. Something is wrong with you. Ideally, you would never be treated like this in your own home. As you try to do your best to manage the situation, you deserve respect over constant nagging." Read more →