...As with most types of dementia, family members are the primary caregivers by default, at least at the beginning of the disease. They are usually the people who notice that something is not right with their spouse or parent. Again, like Alzheimer’s and most other types of dementia, care needs escalate with time. This ongoing care can be physically arduous and emotionally demanding.
Jeanne Gibbs, whose husband had LBD, illustrates her husband’s state of mind with the scenario below, which she handled like a pro:
Sometimes (but certainly not always!) the cause confusion in dementia can be determined and dealt with.
I worked at home to support us. One day my husband, Coy, was waiting for a rain-delayed baseball playoff game, and he came into my office. Coy: Do we have umbrellas for both of us? Me: Umm… for what purpose?
Minding Our Elders lets you know that you are not alone, that you are not going to be perfect, but you can get the job done, You do the best you can, and that is good enough. We can't be Carol, but we can learn from her going before us. What a friend to have. What a gift she gave us. – CM Jones