Support Feed

Is Alzheimer's As Hard on the Caregiver As the Person with the Disease?

AnxietyIt seems shocking to hear people ask whether dementia, particularly Alzheimer’s since it’s the best known, is as hard on the caregiver as it is on the person with the disease. After all, developing dementia of any kind is one of our greatest fears, even overtaking cancer. A caregiver who asks this question must be incredibly heartless and selfish, right? Yet, people who’ve never been a caregiver for someone with dementia need to think this through. When a loved one develops dementia, both the care receiver and the caregiver have entered an incredibly challenging time of their lives.

Read full article on HealthCentral about Alzheimer's and the toll it takes on the caregiver:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol

LAST DAY: Ebook on sale this week for $2.99 in honor of "the longest day" and Alzheimer's Authors


Hospice Care about Re-Focusing Priorities, Not Giving Up

Hands17Our culture is steeped in language that makes accepting the terminal diagnosis of ourselves or a loved one more difficult to accept than it needs to be. Doctors say, “I’m sorry, there’s nothing more we can do. You might want to look into hospice care.” Patients tell their doctors that they want “aggressive treatment,” until there is nothing else that can be done, then they will go on hospice care.

Read full article on HealthCentral about how hospice is an active choice:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol

Ebook on sale this week for $2.99 in honor of "the longest day" and Alzheimer's Authors


Parsing Validation: Helping People Living with Dementia Maintain Self-Worth

CaregiverWomanValidation is a term often used to describe different approaches to helping improve the quality of life of people living with Alzheimer’s disease and other types of dementia. Webster defines the word as “recognition or affirmation that a person or their feelings or opinions are valid or worthwhile.” I believe that all caregivers who practice any form of validation when caring for a person living with dementia aim for the same result. They want to help the person maintain their sense of self, and they want to lower the anxiety and stress that stems from the person living with dementia losing the ability to readily understand the world around them.

Read full article on HealthCentral about validating the people who have various types of dementia:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

The stories in this fine book showed us how others have gone through similar things with their families and that is somehow reassuring. There are some helpful suggestions but mostly there is the recognition that others went through the same thing. All we can do is our best. That is greatly reassuring during these difficult emotional times. If you are a caregiver, this is a must read. - Delores Edwards


Nursing Home Staff May Not Always Foresee an Approaching Death

Deathcomfort2Dear Carol: My 83-year-old father died recently. He had been in a good nursing home for three years, and there were no changes I his condition that I could see, yet he suddenly died. I keep second-guessing the nursing home staff for not warning me, which is probably unfair, but I can’t help but feel that they should have had some clue to Dad’s impending death. I’m not saying that they were neglectful in any way, and certainly they weren’t responsible for his death. I’m just wondering why they didn’t pick up on what was happening so that we would have had some warning. Shouldn’t they have been able to let us know that he may only have a week or a month to live? Should I ask them for an explanation? – Pat

Read the full column on Inforum about how to cope with the shock of sudden loss under these conditions:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer

Ebook on sale this week for $2.99 in honor of "the longest day" and Alzheimer's Authors


Memory Expert Separates Fact from Fiction about Preserving Brain Health

Exercise13Myths about brain health are as rampant as they are for any feared disease. Neuropsychologist Dr. Michelle Braun is a memory expert who actively fights against these myths. In the process, she helps people learn how to reduce their risk for developing Alzheimer’s disease. Dr. Braun has worked for 10 years as a clinical neuropsychologist in departments of Neurology, Neurosurgery, and Psychiatry in hospitals and academia. In 2008, she received the Practitioner of the Year Award from the Alzheimer’s Association in southeastern Wisconsin.   #ENDALZ  #ABAM @healthcentral

Read full article on HealthCentral about how a memory expert views the preservation of brain health:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

Minding Our Elders lets you know that you are not alone, that you are not going to be perfect, but you can get the job done, You do the best you can, and that is good enough. We can't be Carol, but we can learn from her going before us. What a friend to have. What a gift she gave us. – CM Jones


Alzheimer's Authors Sponsor Book Sale This Week Only to Honor "The Longest Day"

AlzAuthorsSae2AlzAuthors was founded in 2016 by four daughters of dementia who met over the internet because of their books and formed a friendship and a mission to create a space where caregivers can find solid support, and those who share their stories can find the proper audience. I'm honored to be a member of AlzAuthors.


You may have heard that June is Alzheimer's and Brain Awareness Month, and June 21st is The Longest Day. Sponsored by the Alzheimer's Association, these important events increase awareness of Alzheimer's, related dementias, and brain health. In recognition of these events, AlzAuthors has put together our very first eBook sale!


Starting June 21 through June 28, you can take advantage of this opportunity to check out some of our books at reduced prices, ranging from 2.99 to free. We offer a variety of genres, from fiction, memoir, and non-fiction. Many of our books are also available in paperback and audio, so check them out too.


Our books are written from a deep place of understanding, experience, knowledge, and love. May you find one - or two, or three! - to help guide you on your own dementia journey. Browse the AlzAuthors eBook Sale!

#ENDALZ #AlzAuthors #ABAM


Downsizing Not Always Right Attitude As Boomers Move Forward

Moving2Downsizing refers to exchanging large homes for smaller digs, and there are plenty of companies around to help aging boomers make this transition. Yet, there are nuances to making the right changes at the right time in anyone’s life. These nuances are the reason why I became interested in a company called Caring Transitions. They offer help in what they call right-sizing.

I asked Chris Seman, president of the company, about what they do and why they are different from a company that comes in to aid people with downsizing. I found Chris’ information helpful, and I hope that you do, too.

Read full article on HealthCentral about how to determine what kind of changes you need - downsizing or rightsizing?

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

Minding Our Elders lets you know that you are not alone, that you are not going to be perfect, but you can get the job done, You do the best you can, and that is good enough. We can't be Carol, but we can learn from her going before us. What a friend to have. What a gift she gave us. – CM Jones

 


Give Your Dad the Best Father’s Day Gift Ever: Your Attention

FatherDaughter...As years go by, most of us gain–or attempt to gain–perspective. By retelling personal stories, elders are often, consciously or subconsciously, trying to reframe their life from the perspective of time. If we give them the gift of attentive listening, we may find their stories more interesting and even learn something new about them. Since an elder’s history is part of our own, we might learn something new about ourselves, too. This mutually beneficial activity is the perfect gift for Dads this Father’s Day.

Read the full article on Agingcare about how much your attention can mean to both of you on Father's Day:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer


Cruel Remarks Follow Plan to Move Husband Into a Nursing Home

Comfort14Dear Carol: My dad had a massive stroke five years ago when he was 78, and Mom, who’s the same age, is caring for him at home. Mom's finally realizing that she can’t keep this up because her health is declining. I live 500 miles away so I can only help so much. Mom’s tried hiring in-home care but that hasn’t worked out consistently so Dad’s on a list for a nearby nursing home. Having to make this move is heartbreaking for Mom but she knows that it needs to be done. The problem is Dad’s sister, who is also Mom’s friend. She’s been laying guilt on Mom saying that Mom’s not honoring her marriage vows if she moves Dad. This woman has been a widow for 30 years and her husband died suddenly of a heart attack. She has no idea about what Mom’s been through. Mom’s moving ahead with the plan, but my aunt’s bitter words are painful for her. Mom reads your column. Could you give us both some support? TM

Read full article on Inforum about the cruelty of being judged for placing a loved one in a nursing home:

Support a caregiver or jump start discussion in support groups with real stories - for bulk orders of Minding Our Elders e-mail Carol


Celebrating Father's Day When Your Dad Has Dementia

MomandDadFather’s Day and my birthday always fall close together. Some years they are the same day. That always made Father’s Day an extra special time in our house as I was growing up. I was, of course, an adult and mother by the time Dad had the surgery that threw him into dementia for the following decade. However, my adulthood didn’t shield me from the pain of missing “my real dad” when I’d bring Mom up to the nursing home and we brought cards and flowers.

Read full article on HealthCentral about celebrating Father's Day when your dad has dementia:

Purchase Minding Our Elders: Caregivers Share Their Personal Stories – paperback or ebook

“I hold onto your book as a life preserver and am reading it slowly on purpose...I don't want it to end.”  Craig William Dayton, Film Composer