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Caregivers Setting Boundaries With Parents

You set boundaries and make them clear. If the parent continues to complain just to see your reaction or to manipulate you, criticize your every move and generally abuse you verbally, you tell them you will get someone else to take care of them until you both cool off. Read more →

Have a Realistic Holiday Experience as a Caregiver

Today's families are often a patchwork of children, step-children, step-in-laws, step-siblings and elders of varying degrees of relationship and health. Add to that the fact that people marry later and often have children at an older age, and you've got a package that often includes young children, teenagers, young adults, forty-something caregivers, a parent who's had a stroke or two, and maybe one with dementia. Read more →

Educating Grandchildren and Their Friends About Alzheimer’s and Dementia

I’ve heard from many spouses of those affected by early on-set AD, and they are often worried about their young teens. The kids no longer want to bring home friends because Mom or Dad may act “weird.” The same can be said for homes where a grandparent with dementia is part of the immediate household. However, properly handled, these situations can help children mature and perhaps educate their peers. Read more →

Moving Parents with Dementia Closer to Family

Dear Carol: My parents both have dementia, though Mom is declining faster than Dad. They live in the home I grew up in, 700 miles away from my current home. During the last years, their old neighbors have moved and most of their friends are ill or deceased. I want to move them into a nice memory center close to my home. When I talked to Dad a month ago, he said that would be fine but now he doesn’t remember anything about our conversation. Read more →

The Registry provides a platform for education and advocacy and connects members with applicable clinical trials that are often delayed by lack of volunteers. By speeding that process, the Registry is helping critical prevention research get under way faster, and offers a way for anyone touched by Alzheimer’s – and we all are – to take action. Read more →

Dad’s death always news to Mom

Dear Carol: My mom is in a nursing home because of kidney and lung problems plus mid-stage Alzheimer’s. Dad seemed to be doing well at home but had a sudden heart attack and died. It’s been a difficult, sad time for us all, but the worst part now is that Mom can’t or won’t believe he died. We took her to the funeral and did all we could to comfort her, but it’s like her mind won’t grasp the loss. How do we handle this? It’s horrible for the whole family. – Susan Read more →

Telling Loved One That It's Time for Hospice

Hospice organizations understand that the life cycle includes death. The staff and volunteers believe in a dignified, pain free death for everyone, and they do all that is in their power to provide this kind of comfort care. Breaking the news that a loved one is on hospice care may be the hardest part of the experience. Read more →

How Not to Argue With Mom

Life will likely go more smoothly if you resort to some trickery, and even “therapeutic fibbing,” as a way to honor your mother’s role in your relationship. That may seem counterintuitive because loving relationships shouldn’t be based on these behaviors under normal circumstances. However, dementia is far from a normal circumstance. Read more →

One reason that these studies lack participants is that it’s simply not intuitive to volunteer for an Alzheimer’s study if you have no symptoms. However, even if people are interested in volunteering, they worry about the time involved, the privacy of their information and whether their health insurance rates will rise if they do participate. Read more →