Banner Alzheimer’s Institute has chosen November, which is both National Alzheimer’s Awareness Month and National Caregivers Month, to remind people how vital Alzheimer’s research is to our entire nation. Through BAI’s Alzheimer’s Prevention Registry, the organization hopes to highlight the fact that volunteers are vital in the effort to combat this life-shattering disease.
According to Dr. Jessica Langbaum, Ph.D. who is principal scientist at BAI in Phoenix, Ariz., what is termed the Alzheimer’s epidemic now involves more than 5 million people in the U.S. who have developed the disease - with another person being diagnosed every 67 seconds. Additionally, one in 10 people in the U.S. are involved in caring for someone with Alzheimer’s and our numbers are increasing daily. Alzheimer’s is the only condition among the top 10 causes of death that has no cure or treatment.
Alzheimer’s is a particularly devastating disease because it destroys the ability for people to remember their own lives as well as the people that they love. It can also destroy families when relationships can’t withstand the rigors of caring for someone with Alzheimer’s disease. In the end, the disease robs people with the disease of the basic ability to take care of themselves and maintain personal dignity.
Volunteers’ tools and questions
Because volunteers are key to discovering a cure for Alzheimer’s disease, BAI is highlighting this awareness month as a chance to increase enrollment in the Alzheimer’s Prevention Registry.
The Registry is a growing online community of members who are passionate about combating dementia. Currently more than 44,000 members strong, the Alzheimer’s Prevention Registry provides members with regular updates on the latest scientific advances and news. It also presents them with opportunities to participate in prevention studies.
Before joining the Registry you may want to know what you are giving up if you do join and what your responsibilities will be.
First of all, you will not have to provide your personal health information. Naturally, if you choose to join a study, you will then be asked other questions which you can choose to answer or not. But just joining the registry asks nothing of you, nor will BAI share your email address or any other personal information including your name. By joining the registry you are not required to join any clinical trials.
When you join you will receive informational emails, but you will have an opportunity to decide how often and in what form your emails will come to your inbox.
Why join now? November being National Alzheimer’s Awareness Month and National Caregivers Month helps keep alive awareness among the general population. You can join any time, but what better time to join than now? We all need to do what we can to help end this epidemic and there's no time to waste.
Disclosure: Banner Alzheimer’s Institute provided Minding Our Elders with an incentive for participating in the briefing that lead to this post.